The NSPKU

The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973 and continues to provide support today.

The NSPKU actively promotes the care and treatment of PKU's and works closely with medical professionals in the UK.

It organises annual conferences and study days (through local support groups) and is represented throughout the UK as a point of contact for families.

They also publish a wide range of publications (including food lists) for parents, PKU's and medical professionals and also sponsors medical research into PKU.

The NSPKU is run by the Council of Management who are volunteers with PKU in their families.

You can learn more about the NSPKU by visiting their homepage, or clicking here.